Verpleegkunde Nummer 3 , pp. 35-38
sep 2021, jaargang 36
Verpleegkunde Nr. 3 , pp. 35-38
sep 2021, jr. 36
Proefschrift

Verandering begint bij keuze

Ondersteuning van de eigen regie van verpleeghuisbewoners met dementie door partnerschap

In de huidige zorg wordt steeds meer waarde gehecht aan ondersteuning van de eigen regie (autonomie) en individuele voorkeuren van mensen die zorg nodig hebben. Het eerste doel van dit promotieonderzoek was inzicht verkrijgen in hoe en in welke mate de eigen regie van mensen met dementie die in een verpleeghuis wonen, wordt ondersteund. Het tweede doel was inzicht verkrijgen in hoe partnerschap tussen naasten van verpleeghuisbewoners en zorgverleners kan worden gecreëerd, om zo de eigen regie van bewoners te vergroten.

Literatuur

  1. Christman J. Relational autonomy, liberal individualism, and the social constitution of selves. Philosophical Studies 2004;117:143-64.
  2. McCormack B, McCance TV. Development of a framework for person-centred nursing. J Adv Nurs 2006;56:472-9.
  3. Sherwin S, Winsby MA. Relational perspective on autonomy for older adults residing in nursing homes. Health Expectations 2010;14:182-90.
  4. Simmons SF, Rahman A, Beuscher L, et al. Residentdirected longterm care: staff provision of choice during morning care. Gerontologist 2011;51:867-75.
  5. Verkerk MA. The care perspective and autonomy. Med Health Care Philos 2001;4:289-94.
  6. McCormack B. Autonomy and the relationship between nurses and older people. Ageing Society 2001;21:417-46.
  7. Morgan LA, Brazda M. Transferring control to others: Process and meaning for older adults in assisted living. J Appl Gerontol 2013;32:651-68.
  8. Hoek LJM, Verbeek H, de Vries E, et al. Autonomy support of nursing home residents with dementia in staff-resident interactions: Observations of care. J Am Med Dir Assoc 2020;21:1600-8.
  9. Hoek LJM, van Haastregt JCM, de Vries E, et al. Factors influencing autonomy of nursing home residents with dementia: the perception of family caregivers. J Nursing Home Res 2019;5:33-9.
  10. Backhaus R, Hoek LJM, de Vries E, et al. Interventions to foster family inclusion in nursing homes for people with dementia: a systematic review. BMC Geriatr 2020;20:434.
  11. Hoek LJM, van Haastregt JCM, de Vries E, et al. Partnerships in nursing homes: How do family caregivers of residents with dementia perceive collaboration with staff? Dementia (London) 2021;20:1631-48.
  12. Heggestad, Nortvedt P, Slettebo A. Dignity and care for people with dementia living in nursing homes. Dementia 2015;14:825-41.
  13. Cameron N, Fetherstonhaugh D, Bauer M, et al. How do care staff in residential aged care facilities conceptualise their non-verbal interactions with residents with dementia and what relevance has this for how residents’ preferences and capacity for decision-making are understood? Dementia (London) 2020;19:1364-80.
  14. Kada S, Nygaard HA, Mukesh BN, et al. Staff attitudes towards institutionalised dementia residents. J Clin Nurs 2009;18:2383-92.
  15. Spector A, Orrell M. Quality of life (QoL) in dementia: a comparison of the perceptions of people with dementia and care staff in residential homes. Alzheimer Dis Assoc Disord 2006;20:160-5.
  16. Moyle W, Murfield JE, Griffiths SG, et al. Care staff attitudes and experiences of working with older people with dementia. Australas J Ageing 2011;30:186-90.
  17. Boyle G. Autonomy in long‐term care: a need, a right or a luxury? Disability & Society 2008;23:299-310.
  18. Collopy BJ. Power, paternalism and the ambiguities of autonomy. New York: Springer. 1995.
  19. Harnett PJ, Greaney AM. Operationalizing autonomy:
    solutions for mental health nursing practice. J Psychiatr Ment Health Nurs 2008;15:2-9.
  20. Hofland BF. When capacity fades and autonomy is constricted: a client-centered approach to residential care. Generations 1994;18:31-5.
  21. Welford C, Murphy K, Rodgers V, et al. Autonomy for older people in residential care: A selective literature review. Int J Older People Nurs 2012;7:65-9.
  22. Brodaty H, Green A, Koschera A. Meta-analysis of psychosocial interventions for caregivers of people with dementia. J Am Geriatr Soc 2003;51:657-64.
  23. Hutchinson A, Rawson H, O’Connell B, et al. Tri-focal model of care implementation: perspectives of residents and family. J Nurs Scholarsh 2017;49:33-43.
  24. Palan Lopez R, Mazor KM, Mitchell SL, et al. What is family-centered care for nursing home residents with advanced dementia? Am J Alzheimers Dis Other Demen 2013;28:763-8.
  25. Puurveen G, Baumbusch J, Gandhi P. From family involvement to family inclusion in nursing home settings: A critical interpretive synthesis. J Fam Nurs 2018;24:60-85.
  26. Davies S, Nolan M. ‘Making it better’: Self-perceived roles of family caregivers of older people living in care homes: A qualitative study. Int J Nurs Stud 2006;43:281-91.
  27. Soklaridis S, Ravitz P, Adler N, et al. Relationshipcentred care in health: A 20-year scoping review. Patient Experience Journal 2016;3:16.
  28. Shier V, Khodyakov D, Cohen LW, et al. What does the evidence really say about culture change in nursing homes? Gerontologist 2014;54 Suppl 1:S6-S16.
Proefschrift

Verandering begint bij keuze

Ondersteuning van de eigen regie van verpleeghuisbewoners met dementie door partnerschap

In de huidige zorg wordt steeds meer waarde gehecht aan ondersteuning van de eigen regie (autonomie) en individuele voorkeuren van mensen die zorg nodig hebben. Het eerste doel van dit promotieonderzoek was inzicht verkrijgen in hoe en in welke mate de eigen regie van mensen met dementie die in een verpleeghuis wonen, wordt ondersteund. Het tweede doel was inzicht verkrijgen in hoe partnerschap tussen naasten van verpleeghuisbewoners en zorgverleners kan worden gecreëerd, om zo de eigen regie van bewoners te vergroten.

Literatuur

  1. Christman J. Relational autonomy, liberal individualism, and the social constitution of selves. Philosophical Studies 2004;117:143-64.
  2. McCormack B, McCance TV. Development of a framework for person-centred nursing. J Adv Nurs 2006;56:472-9.
  3. Sherwin S, Winsby MA. Relational perspective on autonomy for older adults residing in nursing homes. Health Expectations 2010;14:182-90.
  4. Simmons SF, Rahman A, Beuscher L, et al. Residentdirected longterm care: staff provision of choice during morning care. Gerontologist 2011;51:867-75.
  5. Verkerk MA. The care perspective and autonomy. Med Health Care Philos 2001;4:289-94.
  6. McCormack B. Autonomy and the relationship between nurses and older people. Ageing Society 2001;21:417-46.
  7. Morgan LA, Brazda M. Transferring control to others: Process and meaning for older adults in assisted living. J Appl Gerontol 2013;32:651-68.
  8. Hoek LJM, Verbeek H, de Vries E, et al. Autonomy support of nursing home residents with dementia in staff-resident interactions: Observations of care. J Am Med Dir Assoc 2020;21:1600-8.
  9. Hoek LJM, van Haastregt JCM, de Vries E, et al. Factors influencing autonomy of nursing home residents with dementia: the perception of family caregivers. J Nursing Home Res 2019;5:33-9.
  10. Backhaus R, Hoek LJM, de Vries E, et al. Interventions to foster family inclusion in nursing homes for people with dementia: a systematic review. BMC Geriatr 2020;20:434.
  11. Hoek LJM, van Haastregt JCM, de Vries E, et al. Partnerships in nursing homes: How do family caregivers of residents with dementia perceive collaboration with staff? Dementia (London) 2021;20:1631-48.
  12. Heggestad, Nortvedt P, Slettebo A. Dignity and care for people with dementia living in nursing homes. Dementia 2015;14:825-41.
  13. Cameron N, Fetherstonhaugh D, Bauer M, et al. How do care staff in residential aged care facilities conceptualise their non-verbal interactions with residents with dementia and what relevance has this for how residents’ preferences and capacity for decision-making are understood? Dementia (London) 2020;19:1364-80.
  14. Kada S, Nygaard HA, Mukesh BN, et al. Staff attitudes towards institutionalised dementia residents. J Clin Nurs 2009;18:2383-92.
  15. Spector A, Orrell M. Quality of life (QoL) in dementia: a comparison of the perceptions of people with dementia and care staff in residential homes. Alzheimer Dis Assoc Disord 2006;20:160-5.
  16. Moyle W, Murfield JE, Griffiths SG, et al. Care staff attitudes and experiences of working with older people with dementia. Australas J Ageing 2011;30:186-90.
  17. Boyle G. Autonomy in long‐term care: a need, a right or a luxury? Disability & Society 2008;23:299-310.
  18. Collopy BJ. Power, paternalism and the ambiguities of autonomy. New York: Springer. 1995.
  19. Harnett PJ, Greaney AM. Operationalizing autonomy:
    solutions for mental health nursing practice. J Psychiatr Ment Health Nurs 2008;15:2-9.
  20. Hofland BF. When capacity fades and autonomy is constricted: a client-centered approach to residential care. Generations 1994;18:31-5.
  21. Welford C, Murphy K, Rodgers V, et al. Autonomy for older people in residential care: A selective literature review. Int J Older People Nurs 2012;7:65-9.
  22. Brodaty H, Green A, Koschera A. Meta-analysis of psychosocial interventions for caregivers of people with dementia. J Am Geriatr Soc 2003;51:657-64.
  23. Hutchinson A, Rawson H, O’Connell B, et al. Tri-focal model of care implementation: perspectives of residents and family. J Nurs Scholarsh 2017;49:33-43.
  24. Palan Lopez R, Mazor KM, Mitchell SL, et al. What is family-centered care for nursing home residents with advanced dementia? Am J Alzheimers Dis Other Demen 2013;28:763-8.
  25. Puurveen G, Baumbusch J, Gandhi P. From family involvement to family inclusion in nursing home settings: A critical interpretive synthesis. J Fam Nurs 2018;24:60-85.
  26. Davies S, Nolan M. ‘Making it better’: Self-perceived roles of family caregivers of older people living in care homes: A qualitative study. Int J Nurs Stud 2006;43:281-91.
  27. Soklaridis S, Ravitz P, Adler N, et al. Relationshipcentred care in health: A 20-year scoping review. Patient Experience Journal 2016;3:16.
  28. Shier V, Khodyakov D, Cohen LW, et al. What does the evidence really say about culture change in nursing homes? Gerontologist 2014;54 Suppl 1:S6-S16.
Over dit artikel
Auteur
Linda Hoek
Over de auteur

Dr. Linda Hoek heeft een achtergrond als fysiotherapeut en gezondheidspsycholoog. In de periode 2015-2020 deed zij promotieonderzoek aan de Universiteit Maastricht naar de ondersteuning van de eigen regie van mensen met dementie in het verpleeghuis. Het onderzoek werd uitgevoerd onder begeleiding van prof. dr. Jan Hamers, prof. dr. Hilde Verbeek en dr. Jolanda van Haastregt. Haar proefschrift is verkrijgbaar via www.academischewerkplaatsouderenzorg.nl.
Op dit moment heeft Linda een functie als docent/onderzoeker bij de deeltijdopleiding HBO-Verpleegkunde aan Saxion Hogeschool.

Correspondentieadres: l.j.m.hoek@saxion.nl

Printdatum
17 september 2021
E-pubdatum
20 september 2021
ISSN print
0920-3273
ISSN online
2468-2225
DOI
https://doi.org/10.24078/vpg.2021.9.127848


Over dit artikel
Auteur
Linda Hoek
Over de auteur

Dr. Linda Hoek heeft een achtergrond als fysiotherapeut en gezondheidspsycholoog. In de periode 2015-2020 deed zij promotieonderzoek aan de Universiteit Maastricht naar de ondersteuning van de eigen regie van mensen met dementie in het verpleeghuis. Het onderzoek werd uitgevoerd onder begeleiding van prof. dr. Jan Hamers, prof. dr. Hilde Verbeek en dr. Jolanda van Haastregt. Haar proefschrift is verkrijgbaar via www.academischewerkplaatsouderenzorg.nl.
Op dit moment heeft Linda een functie als docent/onderzoeker bij de deeltijdopleiding HBO-Verpleegkunde aan Saxion Hogeschool.

Correspondentieadres: l.j.m.hoek@saxion.nl

Printdatum
17 september 2021
E-pubdatum
20 september 2021
ISSN print
0920-3273
ISSN online
2468-2225
DOI
https://doi.org/10.24078/vpg.2021.9.127848